Tuesday, 29 July 2008
Mighty Mom i can't wait to see you later this week.
Monday, 28 July 2008
Sunday, 27 July 2008
Wednesday, 23 July 2008
14Q32 Ashley by Roni Gawdin
This wonderful book was written by a dear friend of mine. Her daughter also named Ashley who is now 15 years old has a similar diagnosis as my little girl. She has been on quite a journey she is an amazing mother and tells a very touching story of her daughters first 12 years or so. Her book is very open and honest. Happy and sad all at the same time. This book is available at http://www.lulu.com/content/750016
The Brain That Changes Itself: Stories of Personal Triumph from the Frontiers of Brain Science by Norman Doidge
This books discuss the pasticisty of the brain and it's ability to meet both the brilliant scientists championing neuroplasticity and the people whose lives they've transformed—people whose mental limitations or brain damage were seen as unalterable. We see a woman born with half a brain that rewired itself to work as a whole, blind people who learn to see, learning disorders cured, IQs raised, aging brains rejuvenated, stroke patients learning to speak, children with cerebral palsy learning to move with more grace, depression and anxiety disorders successfully treated, and lifelong character traits changed. Using these marvelous stories to probe mysteries of the body, emotion, love, sex, culture, and education, Dr. Doidge has written an immensely moving, inspiring book that will permanently alter the way we look at our brains, human nature, and human potential.The Elephant in the Playroom: Ordinary Parents Write Intimately and Honestly About the Extraordinary Highs and Heartbreaking Lows of Raising Kids with Special Needs by Denise Brodey
This is book is very honest..reminded me that things could be a lot worse which is oddly comforting at times. Loved the section on finding the best school for your child. Very inspiring for me since I'm already preparing for Ashley's IEP meeting and she is only 3 just a wee bit proactive or maybe anxious is a better way to describe it.If anyone has any books the would like to recommend to me .. please do post a comment. Bloggers love comments you know. And I'm currently book crazy and received a Chapters gift card for my birthday thanks mom your the best. I'm thinking about purchasing Jessica Seinfeld cookbook as i really want to get veggies into James but i have a feeling I'll end up in the Special Needs section.
Tuesday, 22 July 2008
It should be a very easy decision Ashley and the boys need me that is clear and being home with them is a wonderful privilege. This time is so precious. Ashley made great gains over the last 9 months that I have been home she is learning to use the potty, drink, eat and communicate her choices with PECS. She is even more aware of whats going on around her everyone is noticing these changes in her and it's so great.
I'm looking forward to seeing the boys off to school in the morning and being there to pick them up at the end of the day. Being home allows for special time with friends after school and more time for me to cook something necessary for Ashley to want to eat. I don't think she going to continue eating if i revert back to a frozen food menu a necessity in my house when I'm working 40+ hours a week.
I also love working with Ashley on speech, physio, OT and play therapy. I think I'm the only mom that attends play therapy with her child but it's great i learn so much from the therapist at C.H.I.L.D.
My job has allowed for Ashley to get lots of private therapy that is been so great for her. I don't see us cutting back on any of this. I think I'm going to feel so relieved once this decision is final. Now that I've gotten this off my chest maybe i can stop talking and thinking about this 24/7. Which will make everyone around me happy as well.
Someone just called and told me that once i close this door another one will open and i have to agree.
Friday, 18 July 2008
Thursday, 17 July 2008
Ashley I'm so proud of you!
Tuesday, 15 July 2008
Here's some pictures i took the last few days my niece, nephews and second cousins.
Having this much fun lately doesn't leave for much therapy time for Ashley. Which makes me feel a little guilty but she did get some swimming in and lots of attention from grammy and grampy instead. Tomorrow we are catching up for having a number of days off with 2 appointments for Ashley.
Saturday, 12 July 2008
Now the fun stuff...
The past few days we have been having some fun with cousins from Texas Cecila and Kathy. Ashley and I and some friends took Cecila to Canada's Wonderland and shopping at Vaughan Mills. Cecila is 14 she loved both. Cecila was really brave and rode the behemoth at wonderland. Kathy, Cecila and I also enjoyed dinner with as many cousin as get together at the last minute Sue, Memhet, Sandy, Dave, Mike, Michelle, Seth, Quinn, Reiley and Bailey.
Kathy says to me this morning when you go shopping if Cecila wants something I'll pay you back no problem. Boy the girl can shop. I don't think Kathy will send her shopping with me again. It was a fun day.
Monday, 7 July 2008
Her registered dietician visited today and in light of her endocrine concerns with her high thyroid. We stopped the reduce calorie plan and now I'm going to give her 1000 calories in the tube and she can top up by eating as much as she is interested in feeding herself. I saw that coming and had already reverted back to 1000 calories a day when I received that call from endocrine .. it doesn't take to long be able predict some of the advice that is coming your way.
Tomorrow Ashley's off to Sickkids for a visit with the GI Clinic she will have her mic-key button changed (i hope that won't hurt too much) following that she is having her annual echocardiogram and the cardiologist is meeting with us to review the results. They are checking up on her pulmonary hypertension she has had this test a number of times before and it's always scary to get the results I've been hoping to hear that it is resolved for as long as i can remember. Hopefully Ashley and I will be celebrating that tomorrow.
Friday, 4 July 2008
Ashley was working on her standing in the playpen ..she was able to stand here and watch signing times last night start to finish. The playpen is so much better then the stander was. We have since passed Ashley stander on to another little boy that needed one.
This afternoon in the backyard she enjoyed her slide and a swing. Doesn't she look like she about to get up and run around. She was able to slide down sitting up .. often she slides down lying on her back but i encouraged her to stay up right and she made it to the bottom. I'm sure she was proud of herself for doing that because she kept giggling.