Saturday, 28 June 2008
Thursday, 26 June 2008
- 10 for physiotherapy (CME therapy)
- 4 for Augmentative communication,
- 4 for play therapy
- 2 for occupational therapy
- 2 dietitian and feeding therapist
- 1 Early intervention & 2 with potential new nursery school
- 1 SPOC (Single plan of care meeting) basically a team meeting with all therapists, case manager and service co-ordinator.
- 2 medical appointments
Not to mention we also attended a graduation, wedding, parent conference and parent advisory council for the Children Treatment Network. We reduced Ashley's (tube feed) calories and convinced her to do some eating and drinking. Ashley also progressed with her toilet training routine and manages most #2 and a few #1 on the potty! And I never forgot about the boys.
Ashley was a real sport to get through all this. Next month I'm setting more time aside to breathe before potentially starting back to work again in August.
Wednesday, 25 June 2008
James hit a home run at tonight's ball game. He has tons of confidence he says to me "Mommy get ready with the video camera I'm going to hit a home run now" as he walked up for bat. Your thoughts truly are your reality. Boy did he accomplish it too. Way to go Rebels! Celebrations on the bench.Here's the part I caught on video. He made it all the way home but I need to improve my camera skills.
Tuesday, 24 June 2008
Now i think I'll shop for bibs with big pockets to catch as much spilage possible.
I'm so glad that i followed my instincts and kept asking to be sent to endocrine. I must have asked at least 4 times before she got the referral.
Hopefully in August when we take the test again everything will be normal but if not it is nice to have answer. This is something that can be fixed now that we know about it.
Monday, 23 June 2008
At dinner she was reaching for my glass of milk. She enjoyed a slip and made a little mess as well. But we all cheered when she drank some it was great. This would be neater with water but that won't have any calories now would it. Sippy cups also less messy but t0 difficult to use.
Sunday, 22 June 2008
Thursday, 19 June 2008
I been basically told that I'd be wasting my time and money getting private speech therapy for Ashley. Her CDA and SLP both prefer to wait and see but I badly feel the speech areas of her brain needs to be stimulated. Sooner the better i would think. I'm not an expert at any of this but i know she can learn and I have tons of faith in her.
She stares at your month when your talking to her and while working on sounds she moves her lips to the correct positions very nicely and this week was able to make the "mmm" sound we were working on it. Her CDA therapist was pleased and noted it down but still maintained her coming once monthly would be plenty of therapy for Ashley.
If we waited for her to step before i got her the treadmill we could still be waiting. I just want to learn what speech therapist do so I can have a successful home routine and I'm not ready to give up or wait around forever either. It also sucks that you age out of the government speech program at 4 1/2 years too and many kids age out before they are ready for blocks of speech. Just letting off steam I guess.. as i've already written to my MPP and still need to get this off my chest some more. I guess if Ashley is working so hard at learning to talk and walk I can learn how to really complain and be heard. That I'll be working on. As well as hiring the best SLP i can find.
Tuesday, 17 June 2008
Thursday, 12 June 2008
Tuesday, 10 June 2008
So June 2008 it has been very crazy to say the least Ashley has had a minimum 7 to 8 appointments every week for the last 3 weeks going on a 4th week of that now. Today i booked two after school playdates for James at the same time .. so i think i have to slow it down just a little and keep better track of who is coming and going. I took Ashley to see Ramon Cuevas (CME medek therapy creator and amazing man) last week he just oozes optimism and is loving and caring. We are going back to see him tomorrow and I can't wait. Ashley also started a block of augmentative communication with PECS and a switch she gets it but it's still going to take some time .....just the feeling i have so far.. But best of all because i begged and cried her therapist who is helping us with the PECS spends 10 mins at the end of each session on PROMPT therapy which means she is showing Ashley how to make P sounds with her lips with tactile kinestheic input.(guiding her lips in the correct shape) .. after showing ashley the P sounds a number of times and saying Ashley turn.. Ashley formed the P sound with her lips and she tried to make the noise boy did she surprise her therapist. Who was doing the PROMPT stuff i believe only because i broke down crying and begging for it. To say the least i was totally delighted and knew she could do it!!!!
We also visited endocrinolgy and learned that Ashley is 3 s.d (standard deviation) off the average height of a 3 year old and 4 s.d off the average weight of 3 year old. They were concerns more about her weight then height which is the norm for all the docs we see. 4 sd is about 7-8 pounds. But I'm getting used to fact that she going to thin and didn't get to worked about it despite seeing the concern in the doctors face.
She is sitting beautifully straight as can be rarely falls over unless she wants to and loves her new red TrippTrapp chair especially the fact that she sitting at the table with her brothers rather then in a high chair. It's so nice. wish i new how to add pictures here because i think this calls for one.
My boys are loving baseball and have no trouble getting on to base and James has even hit a home run. Was he ever thrilled it was so exciting to see.
That's about it for now .. I'll post about Ashley attempt at a reduce tube feed calorie diet in order to get her oral in take increase next time. That is a story in itself.