Ashley cardiologist was very pleased with her ECHO CARDIOGRAM she has been suffering from Pulmonary Hypertension since birth it was treated with oxygen her first 14 months of life. But has been getting slowly better as her lungs matured and grew. Her heart isn't showing any signs of enlargement and pressures were looking great on the test. Ashley only has to return in 2 years time to repeat the test and if all looks good at that point in time they will discharge her from the cardiac clinic!!! This is super news because last summer the same Dr. Heart was concerned and sent her for a overnight sleep study and a check up with the ENT.
We also learned that she grew 3 and 1/2 cm in the past 6 months which is normal growth and welcome news. She is on the 3% for height but weight on the other hand she just below that but still just on the chart. They are pleased she is growing but have given me a number of ways to up her calories some more. I'll have to write a whole post on that alone.
Some not great news is that she now has scoliosis, this a new diagnosis to add to her list unfortunately but at least some other issues have been resolved.
The thing that bothered me that day besides the scoliosis .. happened when Ashley finished her ECHO which went smoothly then she had the ECG. The ECG is no fun for a four year old she had a zillion stickers and wires attached to her body and had to have her arms and legs held down. She did not like being held down or the removal of the stickers from her skin. Following that it was nap time and the hospital was testing the fire alarm so many bells were ringing rather loudly. While all that was going on we met with a nurse to review Ashley history prior to seeing Dr. Heart well the over stimulation and need for sleep didn't sit well with Ashley she had enough and was crying kicking and screaming well they tried to take her oxygen stats. The nurse meeting with us looked over at Ashley screaming and then Taylor sleeping peacefully in his stroller and asked " now was he a good idea" i thought what that's a sucky question. But I started rambling on about how sweet and wonderful he is and how Ashley just really tired and had enough today. But was that really necessary. I probably should have asked her why she was asking??? Well I'm just venting not sure why this comment is still in my head the next day I'm sure she wasn't intentionally trying to offend me but she managed too.
Here's my girl with the healthy heart & Mr Fantastic idea